Those “first” times

Originally posted on Dac's Mommy:
Is there anything better when your child has special needs and they have those “first” times? You know, like the first word or the first step. The marvelous thing about dac at almost 26 years of age (functions as a 2-year-old) is that she is still progressing! Isn’t the…

“At least it’s just seizures you’re dealing with” It’s so much more than seizures. 

Angela Winkler a fellow mum and good mate who has two children with uncontrolled Epilepsy. Thanks for sharing your thoughts. It resonated with many when you first posted it. I am sure it will resonate with people who follow our blog too.   While waiting at the doctors today I was told by an acquaintance … More “At least it’s just seizures you’re dealing with” It’s so much more than seizures. 

A gift

Originally posted on Amanuensis Sobriquet-Reverie:
There is a gift that can be accepted gracefully, then there are gifts that should be re-gifted to someone who will appreciate the scent, the bubbles, the light. I wonder when my children will realize that a physical gift from them is less important than their presence and time gardening…

Avoiding the Bumps in the Road: Essential Tools and Tips for Parenting Children with Health Issues, by Lisa C. Greene

Reblogged from: http://blog.pcwhi.com/avoiding-bumps-road-essential-tools-tips-parenting-children-health-issues/ Parenting isn’t for the faint-hearted! Raising kids throughout their developmental stages is tricky enough; parents of kids with health issues have to face additional challenges along the way. When we know where the bumps and potholes are, it becomes a lot easier to avoid them! So let’s take a look at some of … More Avoiding the Bumps in the Road: Essential Tools and Tips for Parenting Children with Health Issues, by Lisa C. Greene

Victor or Victim

     Chatting to a mate today and we were discussing how we all muddle along in this journey. We vent and then get on with things but sometimes it can become so much about us that we forget about the kids who are going through this crap arse journey with Epilepsy.  It’s good to … More Victor or Victim

Day 25

Originally posted on Finding Freedom with Epilepsy:
“Only those who will risk going too far can possibly find out how far one can go.” – T. S. Eliot March 26th brings awareness for epilepsy.  How fortunate we are via Epilepsy Canada to have such significant landmarks lit purple to support the cause.  All over the globe countless…

Alien Abduction

Originally posted on the inadvertent feminist:
(originally posted elsewhere, February 2, 2013) Imagine, for a moment, that a part of you – not the whole you, not your skin or hair or limbs or torso, not your body – could be abducted by aliens. Your consciousness, your brain, your mind, your heart, whatever you want…

Grief 

   I have experienced grief before, I have lost family members and I have miscarried babies but this was different. This was grieving for someone who was living it was grieving for my daughter who was lying right next to me falling asleep. I never understood that you could have grief like this, it was … More Grief 

#lifewithepilepsy

Originally posted on Team Bunz:
I want to tell you a story about a hard day, a girlfriend, and my cat. But first: Promise that when I say ‘hard,’ you’ll take that with a grain of salt. Losing a parent is hard. Right? Stuff on the news is hard. Today was just a bump in…