The Whole Child

  
Lizzy is currently in a really good place and I put a lot of it down to viewing her as a whole child. I have put together a graph to show how uncontrolled epilepsy can impact so many areas of your child’s life. Sometimes we just focus on the seizures and forget that there may be other things affecting our children that need to be investigated or questioned. 
When we started doing this we realised the full gravity of the impact Lizzies epilepsy and other developmental issues were having on her. The graph shows all the areas we identified so we knew what areas we had to work on. The list contains  the areas and questions I wish I had of known to think about and I hope they help you like they have helped our family. 

  
Our children are not just Epilepsy they are a little human with all the quirks and intricacies that we have. We view ourselves as a whole and we should view our children in the same way when dealing with a health condition like Epilepsy. 
Some of these areas may not affect your child or may affect your child more significantly than what I have discussed. In turn that means you may have many more areas to create questions that need to answered. You also may have done a lot of the things and if you have your a bloody legend. Love and Strength being sent to you all. 
Ragdoll Mumma Zoe

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2 thoughts on “The Whole Child

  1. Hey there,
    I have chosen not to medicate over the years as her siezures were not a daily occurance and not affecting development. Panayotopolous syndrome, a type of childhood epilepsy.
    In saying that, melt downs are a huge issue, crying inappropriately, chewing clothes, irrational fussy eating, things get too loud or busy and she is on high alert, doesnt like changes to plans etc always need to pay extra attention in these moments to manage it. She also seems to have a different perspective on things to everyone else at times, her perception seems way off. Suggested behavioural tips from the likes of PPP don’t work on her, and sometimes it is like we cannot get through to her to help her.
    I always put it down to her personality, she requires patience in these moments but reading your table has got me thinking that i have unrealistic expectations and that this could be part of her epilepsy.
    Do you know where I can find out more?

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    1. Hi Patricia, I would look into a couple of books that helped me. Out of Sync Child and Sensational Kids. You can also find lists on line about sensory processing to get a bit of a profile of your daughter. If you can access an occupational therapist to get an assessment I would strongly recommend it. I am still unsure if Lizzies epilepsy has caused it or if like autism that sensory processing is commonly linked. Having some tips to help her and for her to understand that being different is okay have made a huge difference to how she copes. xo

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